Gamerosity
Mia Bento

| Mia Bento, 6

Pre B Cell Acute Lymphoblastic Leukemia | Maria Fareri Children’s Hospital , NY

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Overview

Mia is a 6 year old that has more personality then most adults. She's naturally funny and makes them laugh every day. She loves to dance, sing and play with her sister.

Her path to diagnosis first started when we went to Boston to celebrate her fifth birthday. I noticed she was more tired than usual but chalked it up to all the walking around the city. On the second day, she was complaining her foot hurt but we thought she might just have sprained it. A few days later, at Mia's 5 year old check-up, the pediatrician looked at her foot and confirmed nothing was wrong.

We also requested allergy testing since Mia was waking up with swollen eyes every couple of days. The pediatrician called with the blood test results and said she wasn't allergic to anything, but her hemoglobin was low and so they should follow up in a few weeks. On Mother's Day weekend that year, Mia was completely exhausted and refused to walk because her foot hurt so much. We took her to the doctor that Monday and again he didn't see anything wrong with her foot but rechecked her blood. Her hemoglobin was still low so the doctor referred them to a hematologist and more blood tests followed.

The following weekend was Mia’s older sister’s communion, but Mia wasn't acting like herself. The hematologist called with the blood test results and said Mia’s neutrophil count was very low and at high risk for infection. If she spiked a fever, we were to bring her to the ER immediately. Sure enough, at her sister’s party she had a fever and they left a house full of people and rushed her to the ER. She was admitted that evening and diagnosed with Pre B cell acute lymphoblastic leukemia a few days later. We ended up spending a month at the children's hospital.

Mia has been in treatment since May 2017 and is expected to be completed in August 2019. It’s a long treatment plan and some days it feels like there is no end in sight but I know we’ll get there.

Mia has been so strong through this whole ordeal, stronger than I could ever be. She's handling this all in stride and acts like a normal kid most days.

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