Sebastian was diagnosed with NF1 as an infant. In summer of 2013, just weeks before his 3rd birthday, we found that the tumors had grown significantly and were impacting his sight. He began chemotherapy treatment just one week later. Sebastian has chemo every week and is at the doctors office for hours hooked up to his medications. We have a long road ahead of us and there is no cure for NF. It is likely that chemo will be a part of our lives for many years.